Thursday, December 20, 2007
http://www.youtube.com/watch?v=IEuzF-brLfA
Doug has posted the home movie I made of Max and his class singing "Mele kalikimaka" (Merry Christmas in Hawaiian. )
Here's the oh-so-cute performance at Key. http://www.youtube.com/watch?v=IEuzF-brLfA
(My favorite part -- evidenced by my loud laugh you hear -- is 42 seconds in to the video when Max realizes he forgot to to do the choreography for palm trees swaying so he does a quick, improvised catchup. It's great!)
His TuTu (Penny) sent all three boys beautiful handprinted Hawaiian silk shirts last month and Max was SO excited to wear his shirt to sing his special Hawaiian Christmas song.
When I pan over from the daddy on trombone you'll see Max right in the middle of my shot (with his too long hair hanging out from his hat.... he begged me to let him keep it long for his birthday party... apparently the kids at school told him he looked "cool" with long hair... of course all of THEIR mommies have THEIR hair chopped appropriately short... as his is now).
(Picture from Finn's 1st Birthday Party -- just a family dinner on November 28th to mark our happy date. And our little Finn is now doing much, much better from his viral pneumonia. Back to his smiley self!)**********************
Recent Great Question from Max just as he is about to fall asleep at bedtime:
"Mommy, does God have a girlfriend?"
(answer -- "Well -- no.... He loves everyone equally." Max -- "What about his son Jesus?" "Well he loves his son so much that he shares him with everybody." Keep in mind this is a little hard for a mom who still struggles with her own beliefs! But I've decided to stick with the "traditional" church teachings with the kids rather than my belief that "God" is actually the "Earth Mother." He can figure out his own beliefs as he gets older!)
*******************************************
Some of my other favorite "Max Bedtime Questions" over the last couple of years:
"Where's Emmett's daddy?" (Emmett has two mommies....)
"Mommy, why is Superman a man?"
"Why is a ball round?"
and other random moment queries:
-- As a three-year-old friend of Gus is telling us about apple picking, Max asks him, "Are you a FARMER?!?!"
-- "But Mommy HOW did daddy get his tadpole to your egg?"
And so many others I WISH I could remember. As Shannon will attest, Max could take the question "Why?" to further lengths than ANY kid on this planet! Especially when he was 3 and 4, he would literally follow-up your answer with ANOTHER question to the one hundredth degree, until you finally had to throw in the towel and say "Just because!"
Monday, December 10, 2007
Notes from the Hospital with Finn
I tried to check on Mom and Dad and the ice storm earlier, but couldn't get through to Dad. Turns out he's one of the unlucky ones with no power -- and not likely to get it anytime soon. But Mom has been checking on him all day and has offered her house should he need a place to sleep and get warm. Hope you get power soon Daddy! Glad Mom, Monica and Chris have managed to hold on to their's. OKC was the lead story on all the networks tonight because of the ice storm.
Poor Max was sick for his birthday last week but managed to rebound in time for his Captain Hook/Peter Pan party on Saturday. Unfortunately Finn went from feeling punky after his flu booster shot on Thursday to feeling HORRIBLE on Saturday. I was tempted to take him to the hospital then but really wanted Max to have his party, so Finn stuck it out --- thanks to his Essy (Aunt Shannon) literally holding and rocking him for five hours straight on Saturday (with only ONE bathroom break AND the THUNDER of 60 kids and parents directly overhead).
By Sunday night poor Finn had cried and not slept for 48 hours and was having such a hard time breathing that I couldn't bear to make him suffer through one more night, so Doug held down the fort at home while I headed to the ER at 6pm. By midnight they made the decision to admit him to the Pediatrics ward at the hospital. We actually got seen within our first hour in the ER but they treated him there for a long time, hoping to get his breathing under control and enough fluids in through IV to let us go home. No such luck. Out of the four kids there simultaneous to us and the 8 there as we were coming and going, Finn was the only one admitted for an overnight. All the kids in ER with us had the same thing as Finn but he was the only one who tested positive with the RSV virus (Apparently they've had to admit a lot of kids this week. One nurse wearily asked me how many more kids were down in ER when we got our room after midnight, so she could gauge how many more beds might still have to be available to get through the night.)
We're in the same ward Max and Gus stayed in 3 Christmases ago when they both had pneumonia, but they are taking some extra precautions with Finn. Since he has RSV, he can't go out to the kids' playroom or any other part of the hospital and no one can come in our room without donning protective wear from head to toe (except me, Doug and the kids -- apparently we've all been so exposed it doesn't matter at this point). My kids and Josh, Shannon, Doug and I aren't at any big risk I'm told, since RSV seems to primarily infect kids 2 and under. (The nurses have to stay protected so they don't infect the other little ones in our ward.)
When we checked in pooor Finn was in such a catatonic state he could barely hold his head up and just cried and whimpered nonstrop. By 3:15am the IV fluids and the breathing steroids had kicked in -- BIG TIME. Mommy was the one catatonic at this point and Finn was ready to play!!
Doug took the day shift from 10a-3p so I could go home and sleep and then get Gus and Max and bring them here to see their brother, while Melissa helped out as well. Tonight I'm back at the hospital with Finn and tomorrow we should be going home.
The staff at the hospital have been great! They even gave me the secret combo to the room with all the juice, milk, diet Cokes etc in the fridge and gave me carte blanche to come and go from there. (They told me you'd be appalled at some of the parents who come here and act like it's a hotel or just make themselves a little TOO at home. I didn't even ask to get in to the secret room but they let me in anyway, so I appreciated that! After hearing one mother lecture the ER doctor about how she had studied biochemistry and knew the difference between diarrhea and a loose stool, I really felt for these people having to deal with one too many Washington power tripping parental unit.)
Finn was so bouncy this afternoon and tonight that he was downright bored under lockdown. Mom had sent him some money for his birthday so I went to the gift store and found some toys that he is now loving -- a musical Redskins dinosaur (sorry doug but gus will love it!), a toy whale with a tail that wiggles when you pull its string, a Kwanza kids book (hey -- it was $4.99 and the others were $20 plus and he loves it) and an eyeball that lights up and shakes (from the Halloween clearance pile and it's one of his all time favorite things now). We didn't buy him any birthday presents since he has so many hand me down toys from his brothers and got gifts from so many of you, so I figured it was okay to break down and buy him something for his hospital boredom.
Now he's sleeping and I'm hoping to do the same very soon. They check his vitals every few hours and give him his breathing steroids (a Nebulizer -sp?- that vaporizes the Adderall -- sp?). That was every two hours yesterday, every three hours today and tonight at 8pm he tested well enough to go to every four hours. That's the magic number to graduate from the hospital and get your treatment at home! So that's where we are headed tomorrow morning.
His brothers miss him and were very sweet and loving to him at the hospital. Max told me he was really nervous to see Finn "all plugged in" at the hospital, so it was good for him to come here and see how great his brother is doing. (They've also both been very kind and loving to Indira's son Devan. They've arrived in Washington, where they'll be living for the next few years while he gets his chemo. Devan practiced saying "happy birthday max" all week and i watched him practice with Ringo and his parents down in our bedroom. Then he froze up in front of max and max patiently smiled and waited for devan to regain his courage and get the words out. it was the sweetest. Max and gus told me they love having Devan as a new best friend. It's a huge upheaval for the whole family and now Indira is starting the Bloomberg beat she will now have to make all this work -- instead of her Beijing beat she will be covering the presidential campaigns -- a big shift in assignments to bone up on! No rest for the weary....)
p.s. -- The Peter Pan/Captain Hook birthday party turned out great for Max and the rest of us all survived! Five different kids stopped me at school today to request a playdate with Max because they had so much fun at his party. We did a 5p-8p party, a feat never attempted before with these kindergartners -- and they loved it. I made some of the dads dress up like Tinkerbell and some of the moms dress up like Captain Hook for our game. The parents all loved the party because they just kept sneaking over to Doug's museum -- where he had a tapped keg. I loved the party because my sister was holding my baby so I wouldn't worry so much about one brother while the other brother got his big day. But it was honestly the loudest night of my life. Even Gus was a little startled by just HOW loud so many 5 year old girls can be. He in fact announced he is OVER his crush on 5 year old Sophie Stein because "she's just too much for me right now." (i'm so not kidding. he actually said that!)
Finally -- Doug had to give a presentation that day before the DC Humanities Council judges, defending his grant -- along with the other grant recipient. He said it went "well." Then our friend and neighbor who went with him to watch called me and said he just had to call directly to tell me how amazing Doug was. "He blew the judges out of the water," the neighbor told me. "They made it clear they had never seen anything like it. They also congratulated him for being the one of the first to do ANYTHING to record native american history in this area. They couldn't believe how much he accomplished with how little money they had given him. One judge even told him to apply for more money, because they WANTED to give it to him." (Of course APPLYING is a whole full time job in and off itself. ) Doug used his grant money to make a video about prehistorical tool-making and you can view it on the museum website at http://www.pmop.org/. By the time he paid everyone who participated, I don't think he ended up with ANY money to pay himself a salary, but hopefully the great grant presentation will lead to more funding for the museum.) It was nice to hear such recognition for all his hard and impressive work!
love to all!!!!!!!!!!!!!!!!!!!!
Rebecca
Thursday, November 15, 2007
Thursday, November 1, 2007
What to Wear for Halloween?
Well ... before I share photos from this Halloween Fest, I will let you check out some of the costumes that were being considered... But not to worry Uncle Brian (and any others worried about Gus' street cred), in the end, the Pink Power Ranger getup did not get the final vote for Halloween attire! Which costumes actually got the go ahead nod from the Dupin boys will be posted later. First, here were some early contenders:
(When Gus announced to me that he wanted to be the PINK
Power Ranger, I told him that was fine with me -- but warned him some kids might tell him he was a girl Power Ranger. He insisted he didn't care what other people said, he wanted to be PINK. Still not entirely convinced, I agreed to get him Pink Power Ranger boots and gloves -- but not yet the skirted outfit. Well, as you can see, he now loves his boots and gloves. And he clearly is confident about his 'look.')
Nicholas Butler(1862 - 1947)
Thursday, October 25, 2007
FinnDORABLE!
Wednesday, October 24, 2007
My story today picked up on POLITICO and Drudge Report : )
As the fires continue to burn in California today...This is an AP picture I kept from the Lake Tahoe fire -- dated June 25, 2007. Doug, Max, Gus and Finn were there and could see these fires burning every day from TuTu and PopPop's deck overlooking Lake Tahoe.
My story today on the federal response included a phone interview I did with former FEMA Director Michael "Brownie" Brown. It got posted on the Drudge Report today (http://www.drudgereport.com/) thanks to my pal (and Allbritton colleague) Mike Allen writing about it for POLITICO http://www.politico.com/. : ) Rebecca
**********
Brownie: Bush not doing heckuva job on fires
By: Mike Allen October 24, 2007 02:37 PM EST
President Bush isn’t doing a heck of a job balancing National Guard call-ups to Iraq with states’ needs back home – and that’s crimping the government response to the California wildfires, according to the man who took the blame for the botched federal reaction to Hurricane Katrina. Michael D. Brown, former chief of the Federal Emergency Management Agency, told WJLA-TV reporter Rebecca Cooper in an exclusive interview Wednesday that the administration has not recognized how much of a “problem” it has with disaster response since so many National Guard troops are in war zones. He did not directly criticize the White House response to the fires. “The White House needs to recognize that we are overstretched and that there is a problem,” Brown said in a telephone interview. “They need to increase the size of the regular Army and stop relying so much on the National Guard.” Brown was the recipient of Bush’s infamous compliment in Mobile, Ala., at the height of the Hurricane Katrina chaos on Sept. 2, 2005: “Brownie, you're doing a heck of a job. The FEMA Director is working 24 — (applause) — they're working 24 hours a day.” Brown is now on the board of directors of Atlanta-based Charys Holding Company, which provides consultation on emergency planning, response and reconstruction. Cooper’s report on Brown’s comments will run Wednesday night on WJLA Channel 7, the ABC affiliate in Washington. WJLA is a division of Allbritton Communications Company, which publishes Politico. Sen. Barbara Boxer (D-Calif.) complained on Capitol Hill Tuesday that the ability of the state's National Guard to respond to disasters like the fires has been compromised because too much of its equipment and personnel are committed in Iraq, The Associated Press reported.
'Plenty of Guards'Brown’s successor as FEMA chief, R. David Paulison, defended the National Guard’s strength when asked about it Wednesday morning during a series of television interviews from Los Angeles. “I have not seen an issue with the Guard,” he said on CBS News’ “The Early Show.” “In fact, they're moving a lot of National Guards in here on the ground.” Paulison added on CNN’s “American Morning” that “plenty of Guardspeople” were available. “There’s emergency management assistance compact between states where we can move more guardsmen in,” he said. “The fact is that there are plenty of people on the ground.” Brown, who later was named first Under Secretary of Emergency Preparedness and Response, made the comments in response to an e-mail asking how much of a burden a catastrophe is for FEMA when a large number of a state’s National Guards are elsewhere during an emergency, and whether FEMA has the capability and infrastructure to be the substitute for so many Guards deployed overseas. "It doesn't affect FEMA as much as it affects the states,” Brown said. “FEMA's job is to pick up the phone and call another governor and say, ‘Hey, California is short on National Guard. Can you spare a few?’ “But you can call any governor in the country and everybody is stretched. Another problem is that literally some of these guys are home from National Guard duty in Iraq for literally five hours before they have to turn around and respond to something here, and that's not good.” Bush, who has led an aggressive administration response to the fires in an effort to show he has learned the lessons of Katrina, plans to fly to Southern California on Thursday to survey the fire damage and response.
White House Press Secretary Dana Perino said Bush will leave the White House early Thursday morning, participate in an aerial tour of the damage via helicopter, then receive a briefing by local, state and administration officials on the wildfires. The president held a video teleconference on the fires and talked with California Gov. Arnold Schwarzenegger (R) earlier Thursday.
Schwarzenegger thanked Bush on live national television Thursday afternoon.
TM & © THE POLITICO & POLITICO.COM, a division of Allbritton Communications Company
Tuesday, October 23, 2007
Update on Indira and Dermot's son Devan



MONDAY, OCTOBER 15, 2007 10:55 PM, EDT
Is too much knowledge a bad thing? It can sure drive you crazy. My reporter's instinct is to learn as much as possible about Dev's disease. But knowledge can be scary, particularly when it raises more questions than you knew to ask, and when you have little or no control over the outcome.
In an effort to plan for Dev's two-year "maintenance" treatment in the DC area and prepare ourselves for any possible twists, I've been reading hematology journals on APL. It's a whole new world of "event-free survival rates,” "RAR-alpha reverse transcript," "allogenic vs. autologous marrow transplants,” and “salvage therapy.”
Since Dev has tolerated chemo so well and his docs believe he is responding well, we have all been very optimistic about his beating this and becoming a long-term survivor. What I now understand is that Dev’s latest bone marrow showed him in hematological remission (the leukemia was zapped out of his blood), but not yet in molecular remission (the cancer is still in his cells). That's why they give three rounds of high-dose chemo followed by two years of lower-dose chemo: to kill off and insure those cells never come back.
The more I learn about his disease, the more scared and anxious I feel. In his type of leukemia, patients need to achieve molecular remission by the end of "consolidation"—in his case, after 3 rounds of chemo—and nearly everyone does. Once there, it is essential to stay in molecular remission, and most do.
But patients unfortunate enough to relapse at a molecular level relapse in their blood soon after. So at the first sign of cellular relapse, doctors pull out even-bigger guns than chemo: arsenic, toxic human antibodies, full-body radiation and bone-marrow transplant. All carry staggering risks and often irreversible side-effects. It's terrifying.
Pediatric APL has about 25% incidence of relapse from what I’ve read. Unfortunately, Devan has high-risk APL, because of his higher white blood count at diagnosis. One study said 59% of high-risk children enjoy "event-free survival" 10 years after diagnosis--which made me worry about the other 41%. One of our doctors commented that I could see that as the cup being more than half-full, so why fixate on bad things that will probably and hopefully never happen? Or you could say that statistics don't mean anything to a parent, because if it's your child, it's either 0 or 100.
We have been through the wringer seeing our only child endure two rounds of chemo and pseudotumor and brain surgery and all the complications…And we don’t want to go anywhere near the horror of relapse. Dermot says we need to remain positive and that my worrying about a possibility that we cannot control only distracts us from taking care of Devan. He's probably right. But I can't help wanting all the information so I don't miss anything or fail to do anything that could give Dev the best possible odds.
I wish someone could tell us that he’s going into molecular remission and will stay there forever and that everything will be fine; that in 16 years we’ll be worrying about college and in 30 years we’ll be meeting his life partner. I would do anything, anything for that to be true. I wish he would just be better and that all this worry could melt away.
Instead, I know that the next time he has a bone marrow biopsy, we will be in agony until the lab confirms he has gone into molecular remission. Dermot's not even sure he wants the doctors to do a bone marrow test at the end of chemo round 2, since we would be devastated if Dev were not in cellular remission yet, even though our doctors say the key is to get there by the end of round 3—and stay there. Every time Dev gets another bone marrow biopsy (every 3 months for the next two years, and every 6 months for three more years, and I think annually thereafter), we will have the longest days of our lives till they confirm that he is still in full remission, and we can go back to our lives…That fear is our life now…
Amid all this turmoil in his mother’s heart, Devan continues to be a totally charming little chap, and shows no signs of being ill. It's hard to reconcile his diagnosis with the high-energy, good-humored boy who greeted all his favorite nurses back in hospital and made a beeline for the playroom on his first morning back.
As I write this, I think of Dev's new roommate, a quiet adolescent with sickle-cell anemia, who has not had any visitors all weekend. No parent spent the night at his side. His only company was TV and a stream of nurses waking him up six times last night for his inhaler and shutting off his IV that kept beeping and waking us up. It is heartbreaking to see a kid going through this alone.
Thank you for not leaving us alone. Indira
P.S. Update: Dev’s ANC was over 300 today so they let him out, and we’re back at Adam and Monica’s for another conditional release!
Monday, October 22, 2007
Waiting for Winter... or at Least Fall!


Friday, October 19, 2007
poor max has shingles. but the doctor was impressed by how little he complains about pain. he's his father's son!
i was able to get free tickets for DISNEY ON ICE -- HIGH SCHOOL MUSICAL. max and i couldn't care less about the show but he and i took another mom and three girls who LOVE the show and were so thrilled with max for taking them.
gus is in love with a five year old girl in max's class. he helped me decorate the house for halloween today. then we went to get max at school before i worked the night shift. he brought a little halloween decoration as a gift for his new love. she loves the attention.
meantime finn is just as happy and jolly as ever.... except late at night when the new teeth poke through.... he's up to six teeth now! but the pain of the new ones coming through is pretty rough. still everyone who meets him comments on what a happy baby he is. he keeps us all laughing!
p.s. -- max and gus were AMAZING sunday night when i took them to the theater. Emily Levey was appearing in Steven Sondheim's MERRILY WE ROLL ALONG so i took them to the final performance. i had never seen the show so was a bit worried when it was all about a heavy drinking hollywood producer who cheats on his wife! luckily ALL of that went way over the boys' heads. they were just so entranced by watching live theater with seats very up close and real people on stage singing and dancing. they loved it and -- since they were the only ones under 18 in the audience -- the other theater-goers were very impressed by how quietly and in rapture they watched the show.
Dear Friends and Family --
Thanks to the magic of the website LinkedIn, I reconnected with my friend Sara Howard. Thanks to the magic of this website for customized blogs, I was able to see all kinds of pictures and news about Sara and Tony's baby daughter and life in St. Louis.
So welcome to the just-created Cooper Dupin family blog!! We assume grandparents will read this more often than most, but it does seem like a great way to share the news of everything the boys say or do that makes us laugh. Or groan. Or want to flee. But mostly just the things that make us laugh!
love -- Rebecca







